ABSTRACT: Development of an internet-based cohort of patients with inflammatory bowel diseases (CCFA Partners): methodology and initial results.
Abstract
BACKGROUND:
The widespread use of the Internet allows for unique research opportunities. We aimed to develop and follow an Internet-based cohort (e-cohort) of patients with self-reported inflammatory bowel diseases (IBD) over time.
METHODS:
We established an e-cohort of adults with IBD (CCFA Partners) by recruiting through Crohn's and Colitis Foundation of America (CCFA)